Hi, I am new to this. I have had stress related IBS on/off for 8 years, never more than a week. Then I started on a new med that upset my stomach in early June, it triggered IBS. Stopped the med, the IBS continued. Got very bad, dehydrated, awful cramping.....went for a catscan, all the poop tests, blood work, they discovered I had norovirus. The IBS continued & 2 gastro Drs told me that post viral IBS is very difficult to control.
I was on Xifaxan for 12 days, it was not covered at all by my insurance & thankfully my gastro Dr found 12 days of samples. That didn't do much for me, but it slowed me down to 3-4x/day.
Hyoscyamine really helped with the spasms, I was on that 3x/day to start when I was in the bathroom 10x/day. I take as needed now.
As soon as I stopped the Xifaxan, things got crazy again! They put me on Cholestryamine, it is a powder that is a cholesterol drug that causes constipation & is being used for IBS. It had been working but when I stopped, I was in trouble again. Then I went on 2x/day for 10 days & weaned down to 1 packet, but something I ate (since I felt well) triggered me again, so I am back up to 2 packets. Hoping this info helps somebody else & will be reading on here trying to find any things I can try for myself.
I have been avoiding coffee, alcohol, milk products. Tried Fodmop diet basically, but the Cholestryamine powder seems to be a partial answer.
They told me to start to experiment with trigger drinks/foods, but after being woken up in the middle of the night again & being a mess this morning, I am going back to restricting myself.
My niece is getting married in Italy & I am petrified about having to deal with this while travelling from US. I have 40 days to get this under control & of course my gastro tells me I will be ok & not to stress as that isn't good for the IBS.