Just Dealing

By mbpfry

1 min read

I've been dealing with the stomach cramps and pain for over 20 years. I've had 2 colonoscopies. Both came back normal. The second said I had a tortuous (my colon has more twists and turns than normal). I hate eating. Especially for the first time each day. The cramps double me over. The pain on my left side is where diverticulitis should be. Its so severe. But I've never been diagnosed. I've been on bentyl and, amitiza. Now I'm trying the apple cider vinegar thing. It helps some. I don't want to be dependent on laxatives. So this is my life. I'm just dealing

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Chris H. Community Admin
I'm sorry to hear how much pain you've been in, <inline-mention user-id="2317988" username="mbpfry"/> ! So many people in this community go through their IBS journey with no answers, so you're not alone. I thought you'd be interested in seeing how others have also mentioned that their IBS is worse in the morning: <a href='https://irritablebowelsyndrome.net/video/ibs-worse-morning' target='_blank'>https://irritablebowelsyndrome.net/video/ibs-worse-morning/</a>. Keep us updated on how you're doing! Thanks for sharing your story. - Chris, <a href='https://irritablebowelsyndrome.net' target='_blank'>IrritableBowelSyndrome.net</a>
obarsher Member
Hi can you try Valerian Root, a natural muscle relaxer? It's mild and might help the cramping. Doesn't taste very good, but I used it after I was in a car accident and my muscles were cramping it helped me. I use Potassium tbs. for leg cramps at night, not sure why that works but it helps with RLS for me. Follow directions on bottle of course. Hope that helps!
auntyjean Member
I had a colonoscopy because of suspected diverticulitis but it was negative though found I have a tortuous floppy colon. I see a colorectal biofeedback nurse who has been helpful but it is difficult to get appointments. I was sent to a specialist dietician who put me on a modified low fodmap diet which made me worse. Most laxatives give me bloating and pain but I have just started on linaclotide and getting some relief. Hope you find something to help.
frazzled Member
Hi. Like you ive had 3 colonoscopies and yold i have an extra long torteous bowel. Had a bad 3 months after many years of control. Apart from being on Laxido plus constant constipation. Im fed up as scared to eat and when i eat is it goung to go straight throygh me or give chronic pain until i almost pass out and and up emptying my bowel. At the.moment been toilet 4 times this morning and bowel us gurgling away and feels almist bruised. Starting to wirry its something more serious.
not found
Hi <inline-mention user-id="2314792" username="frazzled"/> , I can relate to what you are going through. I had to completely go off medications like - buscopan for spasmic pain - iron supplement -calcium supplement - and only take regular Tylenol occasionally if I really need to. All of the above make the ibs-c worse for me. Like I'm living on laxatives. But I have been told by an ER physician that I do require to take something continuously to keep me going. Recommended for me was colace. They come in capsules. 100 mg. I'm on a schedule of taking this medication and with change of diet, low fodmap , drink plenty of water, I have improved. Still have my flares, but nothing compared to how I used to be. Not sure if this is something you have tried. If not maybe asking your doctor for the right dosage for you to start off. Hope this helps you getting back to feeling better.
1. frazzled Member
 Thank. Thats interesting. I am on prescription meds for folic acid, colecaliciferol 800iu tabs, , serotine 50g, mebeverine 135mg for spasms and lastly laxido when necessary. Im going to mention this to dr. Celiac came back negative. Ive lost about 6lbs since Christmas and every time i start to put on a lb i end up loosing it with diarrhoea and my clothes all too big. My stomach has shrunk to i guess as I've been so careful with diet. Worried its something else as i have a vivid imagination and am an anxious person which doesn't help. X