I just don't know what to do anymore
So my ct scan showed no abnormalities so the ibs is something I have to continue to try to manage but I simply don't know what to do anymore. I started to take laxido regularly to get my body into a regularly bowel movement as I suffer with constipation. This is working but now my bowels are constantly sore and I'm going up to 4 times a day some days. I reduced to 1 sachet every other day. I'm careful what I eat as I know the triggers, I exercise 3 times a week, I do deep breathing exercises. Buscopan seems to help a little with the cramps. Nausea is awful. I've never felt so low about this. I'm really fed up with feeling poorly and it can't be much fun for my husband although he's brilliant. I'm worried about being poorly on holiday so I'm getting anxious about booking it. It's taking over my life. We rarely eat out because I don't want to ruin the evening. It's more about feeling so poorly rather than needing a loo nearby. I just want to lie quietly in bed. What sort of a life is that. Probiotics haven't worked. A dietitian just gave me a list of foods to try or to avoid. The thing is we're all different with what works and what doesn't, for instance oats are supposed to be OK but this is a trigger for me. I just wish this would go away 😔
I'm really really sorry to hear that and I do emphazise with you (not your symptoms but mine are also really grinding everything in my life to a halt).
One thing I bet you've tried: Do you train squat-sitting and do you have a toilet chair? (to avoid an unhealthy sitting position on your toilet)
This way you can at least take stress from your gut when using the loo (and gently let your body pass stool along).Thank you, yes squatting helps a little. I don't understand why I feel so poorly when I empty my bowels. Surely I should feel better
So sorry you are going through this. I'm wondering if you could ask your doctor for a colonoscopy. Sometimes things show up in a colonoscopy that don't show in a ct scan. -Elizabeth (team member)
I was told that they won't do a colonscopy for people suffering with ibs as too painful and that the ct is just as reliable but I could ask . Thank you Elizabeth. I was surprised it was clear because I'm suffering more than I ever have. My bowel is constantly sore
I, like Sandy1, have doctors who do not recommend colonoscopies for my irritable bowel syndrome (IBS), and I appreciate them for this fact, since we both know annoying, invasive colonoscopies do not help my IBS! My gastroenterologist does my colonoscopies about every 3 years to help clean out my system - temporarily. And I afterwards, still need to handle my own IBS. So, I reflect on my IBS experiences and use them as I live daily. I STILL get embarrassing surprises at times, just like Sandy1. But I usually keep my IBS quiet. The most important thing I know is, NEVER ignore my stomach's rumbling-churning thing! It's my warning: find my best friend in those moments - a reliable, good-flushing toilet! Or, EXPLODE with whomever or wherever else, I may be! That is definitely true. At least you get one every 3 years which is important. Sorry you deal with urgency. That is the absolute worst. I used to deal with it so much, so I can relate 100%. I wear feminine pads daily which offer a layer of protection and help with the anxiety of having an accident. I hope you are doing well today and having minimal symptoms. Big hugs, Elizabeth (team member)
Have you had a CTE? This is NOT a regular CT. This is a CT that scans your small intestines. There is a difference. The CTE helps rule out any possibility of Crohn’s or any other diseases. Also, I have recently started IBgard; you can find it at the drug store. It relieves gas, bloating, cramping, diarrhea, bowel urgency and constipation.
Great suggestions. Thank you for sharing with the community. -Elizabeth (team member)
how are you doing with the IBgatd?
