Trying to Work
What do I do when I feel like I'm being forced to go back to work, knowing I won't make it through the work night without having an "accident"? I've been off since February with no income because my case was denied. At the beginning they paid me, but now want it back because of the denial. Plus, all my regular bills & now I'm supposed to pay my own insurance.
I had told them I would be back last week but woke up sick. I'd been feeling no pain for almost 2 weeks. After I didn't go last Wednesday, I said I'd be back tonight. Had a wonderful week! Guess what? Of course, I'm trying to get ready for work & I know I won't make it all night & I'll be miserable like I am now.
Well, I'm off to finish getting ready & take off! Any suggestions?
Also, I might add, I've had Axonics implant put in, taking 2 meds for diarrhea, 1 for anxiety, & several for asthma & allergy shots, so it's not like I'm not seeing a doctor! Plus a therapist!
Sorry you are going through this! Honestly, when I was working at an office, whenever I had to go, I just went. I mean, there really is no other option right? And if a co-worker or boss asks you what happened, I am honest and say I am having stomach issues. -Elizabeth (team member)
Oh, believe me, I do go, but with urgent bowel syndrome, I can't make it out of my chair without having an accident. Plus, we wear white clean room suits over our clothes. We're on the 3rd floor & the bathrooms are on the 2nd floor. When I'm having a flare-up I have multiple accidents daily even at home. On some days I will go up to 30 times. Oh my gosh. Yes, when you describe more, this seems quite intense. This seems near impossible if you are going up to 30 times. Do you at least have diapers you can wear? I mean that seriously. Many people in the community wear them. But even still, you have to go to the restroom to change them. Is there another position in your job you can do? Just thinking out loud here. -Elizabeth (team member)
Yes, I always wear diapers when I'm out somewhere. But even with them & the baggy pants I've lost a lot of clothes! & I spend a minimum of 20 minutes in the bathroom each time. The last time was over an hour cause it was so bad & that was at work.
I'm thinking that's part of the reason I'm having trouble getting back to work. People have made what they considered funny remarks. I'm running up & down the stairs all night & they're having to pick up my slack.
As far as another position, we all work on the 3rd floor. I've been there 21 years, full retirement is 66 & a half, which is a year & 3 months away. That's what I'm trying to hold out for!
We'll all stick together & make it, one way or another!Oh that makes total sense then. One year and 3 months until retirement. I totally get it. -Elizabeth (team member)
This situation is so difficult for you, and I'm sorry your case was denied. You are not the first I have heard of others recently who couldn't get disability allowance with IBS. It is so unfair. The people who deny it could do with experiencing IBS if only for a month!! I'm guessing you have the "D" (diarrhea) version? If so, I imagine you must already have tried Imodium (loperamide) Not to completely block you up, but maybe you can work out a maintenance dose to just control things a little bit. I don't know.
Good luck and I hope things get easier for you one way or the other. I was lucky and could retire at 64 because of my date of birth.
