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Anyone here with PTSD from gut issues?

I've been diagnosed with PTSD from health-related issues, many of which center around my gut. I've had an IBS diagnosis since the late 90s, and was managing pretty well until a few years ago. I read about the low-FODMAP diet in a magazine and tried it, and it helped -- but the article failed to mention that you're not supposed to be on it forever, you're supposed to re-challenge. I didn't know about that until 4 years later, and then re-challenging was a nightmare. Then I developed chronic diverticulitis (I had had it a couple of times a year for a few years, but it got to where I was having it every three months or so) and that's where the PTSD came in.

Went to a nutritionist to see if we could manage the flares of that, she put me on all kinds of diets -- SIBO, leaky gut, etc. She did a food-sensitivity test that supposedly told which foods were causing me problems, but going on it didn't help either the diverticulitis flares OR the IBS, and then I read that those tests aren't really legit, that you can't tell about food sensitivities that way. By the time I left her practice I was totally screwed up about food. Finally ended up having a partial colectomy for the diverticulitis problem, but I still have "mild" diverticula all over my gut, they just took out the "severe" section. (So far -- two years now -- I have had no recurrences of that, but I'm still nervous that it could start up again.)

So now I am utterly and totally afraid of most foods. I have a very limited range of things I feel safe eating (maybe 15-20 things? I haven't counted, but I eat pretty much the same things every week and am terrified to experiment). I am working with an EMDR therapist for the PTSD, but since that has opened up many other issues I have, progress is slow, and the food issue has taken a back seat.

I'm just wondering if there is anyone else out there with severe food hangups because of their IBS, and what you do to cope with Food Fear. I could use some suggestions. (I can't promise I'll take them because I am just that afraid of screwing things up in my gut, but I'd appreciate ideas.) [My IBS is primarily the C variety. (Which is scary for diverticulitis, as being constipated can contribute to a flare.) I manage it with Heather's Tummy Fiber, Vitamin C, magnesium glycinate and coconut oil. I don't get a lot of fiber in my diet otherwise.]

  1. ,

    Thank you so much for sharing your story. While I don't have PTSD (I have an extreme anxiety disorder though), you might be surprised how many people on the site, including me, have experienced extreme food related fear due to IBS and other gastro issues. I am including one of the three or four articles I have written over the last few years regarding this subject. You are not alone and it is very real. Thank you again and I hope you are well today. https://irritablebowelsyndrome.net/living/fear/ -Todd, IrritableBowelSyndrome.net Team

    1. Thank you, Todd! It's good to know I'm not alone. "Normal" people without food issues really don't understand what it's like. "Just try it to see" doesn't work for me. I'm a little gun shy where bowel discomfort is concerned!

      1. Oh that phrase "just try to see" is one I've heard a couple of times. But man, people don't understand the suffering that can occur if it doesn't go well. Trying is definitely something I don't do often because of the severe repercussions that can soon follow.

        Elizabeth (team member)

    2. I'm so sorry you are going through all of this. I can relate to your struggles. I too worked with a food allergist that honestly made my relationship with food worse. I did allergy testing and I had so many reactions to food that it made me afraid to eat anything. I now have a fear of eating food because I am afraid of getting sick afterwards.

      It is not easy! But I think it is very wise of you to be working with a professional concerning the PTSD. I believe we can all heal. So keep moving forward and taking the time to work on it. Sending big hugs your way! -Elizabeth (team member)

      1. Thank you, Elizabeth! I'm sorry you've got this food fear, too. I'm hoping one day we'll figure out how to let go of it. <3

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