I've been diagnosed with PTSD from health-related issues, many of which center around my gut. I've had an IBS diagnosis since the late 90s, and was managing pretty well until a few years ago. I read about the low-FODMAP diet in a magazine and tried it, and it helped -- but the article failed to mention that you're not supposed to be on it forever, you're supposed to re-challenge. I didn't know about that until 4 years later, and then re-challenging was a nightmare. Then I developed chronic diverticulitis (I had had it a couple of times a year for a few years, but it got to where I was having it every three months or so) and that's where the PTSD came in.
Went to a nutritionist to see if we could manage the flares of that, she put me on all kinds of diets -- SIBO, leaky gut, etc. She did a food-sensitivity test that supposedly told which foods were causing me problems, but going on it didn't help either the diverticulitis flares OR the IBS, and then I read that those tests aren't really legit, that you can't tell about food sensitivities that way. By the time I left her practice I was totally screwed up about food. Finally ended up having a partial colectomy for the diverticulitis problem, but I still have "mild" diverticula all over my gut, they just took out the "severe" section. (So far -- two years now -- I have had no recurrences of that, but I'm still nervous that it could start up again.)
So now I am utterly and totally afraid of most foods. I have a very limited range of things I feel safe eating (maybe 15-20 things? I haven't counted, but I eat pretty much the same things every week and am terrified to experiment). I am working with an EMDR therapist for the PTSD, but since that has opened up many other issues I have, progress is slow, and the food issue has taken a back seat.
I'm just wondering if there is anyone else out there with severe food hangups because of their IBS, and what you do to cope with Food Fear. I could use some suggestions. (I can't promise I'll take them because I am just that afraid of screwing things up in my gut, but I'd appreciate ideas.) [My IBS is primarily the C variety. (Which is scary for diverticulitis, as being constipated can contribute to a flare.) I manage it with Heather's Tummy Fiber, Vitamin C, magnesium glycinate and coconut oil. I don't get a lot of fiber in my diet otherwise.]