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IBS Diagnosis

I had been diagnosed with IBS for years with no solution for my painful attacks other than Buscopan. When I finally had my colonoscopy the dr realized I was in trouble as he could not perform that test. I then went for a colonography and after that I was scheduled for a barium X-ray. After that it was off to the surgeon who removed my sigmoid colon due to severe diverticulitis which had ruptured into my uterus. I had a four hour open surgery and ended up with a colostomy for 15 months. After I had that reversed I waited another nine months to have five hernias repaired as well as my abdominal wall. I guess in hindsight I should have gone for a second opinion instead of letting my dr put me in the category of IBS which could mean a variety of things. I complained of pain but he didn’t take me serious. My surgeon said I had so much damage in my bowel that he was surprised I could even walk. Some days I was doubled over with pain but I could manage the pain and it would go away in a day and I would put it off to IBS. Since my surgeries I now feel great but wish I had pushed for an actual diagnosis earlier as I was 64 when I started having my surgeries and I went for very long time having diverticulitis attacks. Now my main concern is being careful with my diet as I am prone to blockages and will be for life.

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  • nlpixie
    1 year ago

    Hi Kanagurl,

    WOW, what a story, and such a long recovery time with life long side effects from the surgeries. I agree that the medical profession seems to push IBS without always doing lol the tests to ensure it is not something else first.

    I too have diverticular in my sigmoid Colin, and also gallstones, so I get tested every two years to ensure that this is not something more serious. This has laos helped me recognise that IBS is my core diagnosis.

    Agree the second opinions are well worthwhile and finding the right Doctor that takes you seriously is also a big help.

  • Chris Hall moderator
    1 year ago

    Hi, @kanagurl64 – thanks so much for sharing your story. I’m so sorry to hear about all the surgeries you’ve been through. You’re certainly very resilient for managing all of that pain. I’m so glad to hear that you’re feeling better now, and your diet concern is very understandable. Have your doctor’s given you any guidance with this? – Chris, Team Member

  • kanagurl64 author
    1 year ago

    Not really. My surgeon who did the bowel resection said to eat anything. But I have learned for the most part what I have to be careful with. Popcorn, raw vegetables and meat can be a problem. Anything that is stringy. If I feel a blockage which usually starts with intense cramping I will take zofran and Tylenol and massage my pain and I can usually get things turned around. I have had three blockages. They are a horrible experience and I try to avoid them.

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