IBS & ME

By Xsuz

1 min read

First of all I’ve learned so much from this site... the pain, the bloating, the bathroom runs or lack of, not being able to wear jeans that aren’t elastic or any other pants. I could go on & on about the relief that there are so many people with the same situation.

I am gluten & lactose intolerant. After 10 years of living like this I’ve adapted to the lousy eating habits. I switched gastroenterologists & found out I had IBS. Colonoscopies & 2 endoscopies proved all this. After a very invasive MRI they discovered that my colon is crooked. I even carry around a drawing that the doctor did, along with all the foods I cannot eat. I’ve tried everything including Linzess. But after awhile I just started getting sick on it.

Most of the time I don’t leave my house. And any appointments are made after 1pm. Praying that I can make it. There’s so much more to say but think that’s enough. My heart goes out to all of you who suffer like I do. Thank you for being there for all of us.

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Karina Moderator & Contributor
<inline-mention username="Xsuz" user-id="6926036"/> Thank you so much for sharing your story. I'm so sorry that you're dealing with this and that there are so many foods you can't eat, it's very frustrating. You're definitely not alone, and I'm glad that this community helps you cope a little bit. What does it mean for you that your colon is crooked, do you have any specific symptoms caused by that? Or does the doctor believe it could be the cause of your IBS? Sending hugs, Karina (team member)
Kim Dolce Moderator & Contributor
<inline-mention username="Xsuz" user-id="6926036"/> I am curious about what caused your crooked colon (is it congenital or did it change?) and whether it is the cause of your IBS. Do tell!
Kim Dolce Moderator & Contributor
<inline-mention username="Xsuz" user-id="6926036"/> How are you feeling these days?
Goose Member
From a colonoscopy, they said my colon had too many bends, which was why its so slow to work. The prep the first time when took as normally directed, was not enough time for my case. The 2nd dose (liquid mix) was to be taken at 10pm. A normal person, would be cleaned out within the next hour or two, For me, I was going throughout the night, had to sleep in a diaper and cover, when I finally dozed off, woke up with a huge mess down there. Then, I was still having to go while in the waiting room for the colonoscopy. They could not see well in there. Had to do it again in another year. That next time, I started the prep 5 hours sooner than directed, and that worked fine. Now, I am good for 5 years until the next one. 
1. Karina Moderator & Contributor
 <inline-mention username="Goose" user-id="8775646"/> Thank you for sharing your experience! That's so interesting that prep time may depend on the person, I had no idea. I'm glad the second one went better and you don't have to do it for another 5 years. Karina (team member)