IBS Horror

By Ruthie E

1 min read

I am going through the worst time in my life. I suffer from constipation, bloating, gas, and no rest. Have had three bad days. Pain all night, sleeping on and off. Pelvic pain starts off and then cramping. I seem to get it in the night. I have been to the ER and had a CT. Only found constipation. Have had blood work, X-rays, and exams for the last five months.

Hard to plan

Now taking Miralax and Linzess. Doctor keeps changing med doses. I have a few good days, but most are bad. Now trying peppermint gels for the bloating and cramps. Look pregnant when bloated. Know then I am in trouble. Eat fiber (have Celiac). Try walking, but some days just too damn tired. Sleep when I can. Hard to plan anything. Usually make dates for afternoon. Wish I could give something positive to help. I cry, take tantrums and swear a lot. Seems like you are not in control. If anyone feels this way please post. Go with the flow I guess.??

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Ray Li Member
<inline-mention username="Ruthie E" user-id="4695045"/> Sending gentle hugs your way. I am so sorry to hear that your IBS is so rough. Constipation is never fun, I try natural things like going down a really bumpy road. Although, that can be a challenge if there isn't a bathroom nearby. I bloat very heavily too. It doesn't help matters that 3 of my other diseases also cause bloating. There are sometimes in the middle of the night where my bloating is minimal to non existent. I've had my doctors mistake it for fat. Sometimes my gas is so painful I feel like I am going to either faint or throw up. It's good to feel all the emotions that go along with the new life IBS has brought to you. It's perfectly normal to grieve the life you once had. I can't say for any certainty, but I think drinking a shot of aloe vera a day for a couple of months helped me. But like I said, I don't know for sure, it could have done nothing and my IBS just eased up a bit on it's own. I use medical marijuana (Legal where I live) to help. <img src="/content/images/2022/06/02/22d23641cc6495e91d8e89da387ab206_medium.jpg" alt="My bloated stomach" class="uploaded-image"/>
DEATHDARKBITCH Member
You're not the only one kiddo. It's like the old saying "having your guts for garters" Go to the Chiropractor.Trust me it works.
1. Karina Moderator & Contributor
 <inline-mention username="Eleanorannford" user-id="4232469"/> Did you find anything else that works better for you? Karina (team member)
2. Karina Moderator & Contributor
 <inline-mention username="DEATHDARKBITCH" user-id="4250368"/> I'm glad that going to the Chiropractor helps you! I'm curious, what to they do during your appointments exactly if you don't mind sharing? Karina (team member)
Eleanorannford Member
Ruthie
Gemm Member
I too been to the ER and got a cat scan they said I was constipated I know how bad the pain can get and how sick you can feel from it I started to use milk or magnesia with a bottle of water I go within a few hours your not alone I will say a prayer for you
1. Gemm Member
 <inline-mention username="Karina" user-id="2303467"/> milk or magnesia might help you also with a bottle of water it tastes nasty but it's worth it 
2. Karina Moderator & Contributor
 <inline-mention username="Gemm" user-id="6964046"/> Thank you! I personally deal with IBS-D, but that's a helpful tip for everyone dealing with constipation. Another community member recently asked about other people's experiences with milk of magnesia (here: <a href='https://irritablebowelsyndrome.net/forums/fiber' target='_blank'>https://irritablebowelsyndrome.net/forums/fiber</a>) so I'm going to direct them to your comment! Karina (team member)
DEATHDARKBITCH Member
It's too complicated to explain. The easiest thing I can tell you is literally snap,crackle and pop through manipulation of muscles etc. It's basically resetting your body. Crawl in, dance out. Works for me. It's not a figment of the imagination, it's in the spine. All drs missed that seminar.
1. Karina Moderator & Contributor
 <inline-mention username="DEATHDARKBITCH" user-id="4250368"/> That's not the first time that someone shared about the connection between the spine and IBS, it's so interesting! I was mainly asking because I've tried seeing an osteopath for my IBS in the past, but all they did was poke around my intestines and prescribe me very expensive but useless supplements... Do you go to your appointments specifically to relieve IBS symptoms or just to improve how your body feels in general? Karina (team member)
DEATHDARKBITCH Member
 Its known as an MOT for the body. He treats everything, spine, digestive system, the whole body and he doesn't push a load of supplements either. I just tell him what hurts and he treats it. Granted I scream in pain but like he says "no pain no gain". Trust me it helps a lot. 
1. Elizabeth Alvarez Moderator & Contributor
 I'm glad it helps you a lot. That is what counts! -Elizabeth (team member)
Njf0618 Member
It's always disappointing and frustrating after having a period of time that all seems well to go back to symptom mode. Sometimes and can't even figure out what I'm doing differently but just glad for any let up in symptoms. 
1. Njf0618 Member
 Yes, after using the imodium for a safe trip I ate some things when I got home that aren't really super agreeable and things are back to normal for the most part
2. Karina Moderator & Contributor
 <inline-mention username="Njf0618" user-id="4832334"/> Glad to hear that things are mostly back to normal. Wishing you a symptom-free day today, Karina (team member)
AnnaO Member
I’m so sorry you’re feeling this way but I can totally relate. The constant doctors visits telling you they can’t help you and then you are left to suffer in pain - it’s a cruel existence and I really struggle with anxiety and depression because of it. I have a fear of food. I do research online and my mind races trying to find the fix that will get me my life back. But I try and try and I can’t escape the pain. I’m terrified I’ll never find an answer. Wow sorry this is so depressing. I was hoping to show solidarity.
1. Karina Moderator & Contributor
 Hi <inline-mention username="AnnaO" user-id="8612295"/>, I can totally relate to how you're feeling, I think so many of us can. I also went through years of trying to find answers and nothing the doctors prescribed helped at all. Please don't lose hope and keep advocating for yourself, it can take time but you absolutely can feel better: <a href='https://irritablebowelsyndrome.net/living/hope!' target='_blank'>https://irritablebowelsyndrome.net/living/hope!</a> For me, I figured out that it was actually my anxiety that was triggering most of my symptoms in the first place, which is why no medication ever helped and my diet was becoming more and more restricted. I'm doing a lot better since making major lifestyle changed to reduce everyday stress and working on my anxiety. Cutting out gluten and many processed foods also helped me, as well as letting go of the notion that I needed to eat tons of raw vegetables to be healthy. I now focus on higher quality animal foods and smaller portions of cooked veggies, which works so much better for me. Have you ever tried EFT tapping? I started that recently and found that it helps so much with my mindset around IBS. Wishing you all the best, Karina (team member)