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I am now 39. This story began at the age of 17. 22 years of unknown suffering from IBS. I knew, because I was diagnosed at 17, with IBS-D, others just assumed it was occasional “upset stomach”. No one understands unless they have it themselves. The constant worrying and planning out each event of your life because you never know if you will make it to the closest restroom in time. Nor do you even know how long each restroom visit will last or how long before your trip to the nearest hospital will have to be made because of dehydration from severe projectile diarrhea. The cramps and constant gurgling in your stomach is enough to make you want to just roll over and give up. So many missed plans and opportunities with family and friends. So many lost jobs due to maxed out sick days or “poor productivity” at work due to being sick but having to force yourself to make it in to a job that doesn’t give to “F’s” about your chronic illness. This is not an illness for the weak at heart. You have to be one bad ass human to continue living daily with such an invisible illness that no one else understands. Taking over the counter meds non stop until the point where your body builds up a tolerance to Pepto, Imodium, Gaviscon, Alkaseltzer..the list goes on and on. Then having people judge you by how skinny you are. Thinking your on drugs Or have an eating disorder because you can’t keep weight on from having everything you eat come right back out in a flood of water. This feels not like a life but more like a karmic punishment.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • HaleyTheDogMom
    2 years ago

    Thank you for sharing. I am feeling less stressed about my IBS-D since there really are people who can relate. You’re wonderful!

  • HessP moderator
    3 years ago

    Hey Rdaydreamz! You have described exactly what I have been going through for years! I felt that I just had to comment and reach out. You are definitely not alone and I’m glad to see you open up about what you have gone through. Living with IBS is not easy, and you definitely have to be a strong individual to continue to function as best as you can in society. Please do come back and keep us updated. We’re always here for support! Thanks for sharing! -Hess (Patient Advocate for

  • DanaL
    3 years ago

    Hi Rdaydreamz!

    Thank you for sharing your story with us and being a part of our community, we are so happy to have you here!

    If you haven’t read it already, I thought you might be able to connect with this article about one of our other community members frustrations when IBS attacks:

    You are so right when you say that it takes a very strong person to manage living with IBS! We hope you can find some good support within our community. Please feel free to come back anytime to update us on how you are doing, browse more articles, and connect with others!

    Stay strong and keep smiling!
    Dana ( Team)

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