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Suffering Without Any Answers

I have suffered a very long time with undiagnosed symptoms. I have been told it could be gerds, could be diverticulitis, gall bladder you name anything close to what could cause my symptoms. I eat and get sick often times before I finish my meal. I have stomach and side pain that can send me to bed. Vomiting,diarrhea and cramping. No rhyme nor reason to what foods can be causal. Can eat tomatoes five times in a row and get deathly sick the next time. If I eat to control IBS then I irritate the IBD. Again not diagnosed but is based on what I read. My doctor is a practitioner and she disagrees with the Doctor. I have had the tests several time in recent years. Upper and lower GI. Cat scan, x-rays. They never find anything definitive. I cannot have such pain for them to find nothing. Looking to hear from anyone else who suffers with no answers.

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  • BonnieK
    3 years ago

    Hi, I’m Bonnie.
    I’ve had ibs for 38 years. It’s worse than ever now and prevents me living a normal life more than any of my other illnesses: MS, Fibromyalgia, arthritis, +++.
    Your post is very helpful. It’s great to know I’m not completely alone. Usually seems that way.
    Your symptoms are about the same as mine.
    I can spend weeks, even months without being able to leave the house. I’m not agoraphobic, it’s because feeling well enough and having enough pain relief is very rare.
    What helps you?
    Peppermint oil? Probiotics?
    I’ve taken Dicyclomine but after 2 months it seems ineffective.
    Well hope someone is really going to respond.

  • HessP moderator
    3 years ago

    Hi Bonnie! Thank you so much for sharing! You came to the right community because everyone here is very supportive. I’m sorry that you’re suffering from IBS, along with other illnesses. You may want to speak with your primary care physician or a GI specialist about treatment options for your symptoms. From one IBS sufferer to another, managing my diet and getting little exercises in my day helps me. You may also want to refer to this link for useful information about dietary therapy: “”. Remember, you’re not alone and we’re always here for support! Stay positive! -Hess (Patient Advocate for

  • HessP moderator
    3 years ago

    Hi Lakeside girl! I, too, have suffered for a long time without any answers. At one point, I suffered from a bacterial infection that started some of my symptoms. Then I was cured from it. Later on, the symptoms came back full force, but without the infection. Doctors didn’t provide me with anything conclusive as to what was causing my symptoms and I felt like I was going down a hopeless road for a while. Long story short, I finally was diagnosed with IBS eventually. The best advice I can give you from one sufferer to another, is get to know your body more and never lose hope! Life has a funny a way of getting too hard to handle, but just when that moment becomes too unbearable, things start to change and life becomes easier. Also, it’s important to get the right help from the right experts, but I also believe that we should take our health into our own hands as well (i.e. exercise more, eat the right foods, etc.). I really hope you find the answers you’re looking for and I wish you better health from here on out. Stay strong and thanks for sharing!

  • DanaL
    3 years ago

    Hi Lakeside girl!

    Thank you so much for being a part of our community and sharing your story with us, we are so glad to hear from you!

    I really hope you connect with some of our other community members soon, because there are many that are experiencing similar frustrations as you. I thought you might be interested in this article to help you persevere:

    Please come back to connect with others, get more information, and update us on how you are doing, we would love to hear!

    Stay strong!
    Dana ( Team)

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