How have your relationships changed since your IBS diagnosis?


Community Answers
  • jaeger91
    9 months ago

    I have a wonderful husband who is not only very supportive and understanding, but also very accommodating. Some of my friends have been, too. Others, I haven’t felt I could confide in and share with them that I have IBS. If I experience a flare up that causes me to cancel plans with them, or they aren’t wanting to meet in a place that would better accommodate me–because they are unaware of my needs–I usually tell them I have a migraine and need to bow out. It’s easier and more socially acceptable to use the headache than stomach issues. Yes, I feel like a jerk for lying, though it’s not uncommon for me to have a headache when constipated. People just don’t really understand IBS. I know it’s something I could try to educate them about, and maybe I will get to the point where I feel like I can. Right now, it still feels somewhat stigmatizing and socially unacceptable to discuss. That’s why I really appreciate this forum. Thanks for the opportunity to share.

  • JudyStaed
    10 months ago

    I am by nature a very friendly and outgoing person. As my IBS gets increasingly worse I find that I just pull back from people…from their attempts to get together with me…to go out for lunch with me. Dealing with what can be at times the very isolating factor of IBS can almost be as difficult and painful as the symptoms themselves. When I try to explain what I suffer to others at times I know they do not understand and often I feel others might view me as just a person who likes to complain. Thankfully, I have a very kind and understanding husband who has walked this journey of mine by my side. Still, I just wish I could spread my wings and fly freely through life instead of living with all the limitations I do.

  • Chris Hall moderator author
    10 months ago

    Hi, JudyStaed – thanks so much for taking the time to weigh in! It truly is hard to understand unless you’re experiencing all the issues of IBS. This community knows you’re not just complaining! It’s really great to hear that you have such a supportive husband who remains by your side through the ups and downs. I thought I’d share this article with you from one of our IBS advocates about his perspective on isolation: https://irritablebowelsyndrome.net/living/ever-feel-really-alone/. I hope this helps! Thanks again for sharing with us. – Chris, IrritableBowelSyndrome.net Team Member

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