What has been your biggest struggle in dealing with an invisible illness?

Community Answers

  1. peg215 says:

    I feel like no one in my family understands the frustration of the disease. I can’t even make it through the grocery store sometimes (often lately) without having to find a bathroom. It’s usually necessary when I am absolutely the furthest possible from the bathrooms, or in the checkout line (then what?)! I’m warn out. I also have psoriatic arthritis and hypothyroid ism (thyroid removed due to three suspicious tumors). I have to add in depression and anxiety, too. I feel like the depression and anxiety are directly linked to this wonderful trifecta of diseases. I’m sure it’s hard to look at me – with no outward appearance of disease – and totally not understand how much pain and stress I feel.

  2. nanaboyer says:

    Work and going places. There are days where I’m afraid to leave the house.

  3. Chris Hall moderator author says:

    Thanks for answering, nanaboyer! We’ve definitely heard a lot of feedback from the community about work and travel as well. I’m hoping that those days are far and few between for you! Here’s an article that I thought you might find interesting about work and IBS: https://irritablebowelsyndrome.net/living/tips-tricks-tools-work/. Thanks for taking the time to comment! – Chris, IrritableBowelSyndrome.net Team Member

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