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3 Reasons Why I Dislike Having IBS-D

Living with irritable bowel syndrome, no matter what subtype, can be very difficult in so many ways. However, since I deal with IBS with predominant diarrhea (IBS-D), I sometimes speak from a certain perspective that not everyone with IBS will be able to relate.

For instance, I struggle with the likelihood of having to use the toilet a great number of times a day. There have been days when I literally have gone more than 10 times, and before having IBS, I never thought such a thing was possible. Some people who don’t have IBS don’t realize the toll it takes on a person when their body is pushed to the point of extreme pain and exhaustion due to an uncontrollable need to expel several times a day. With that being said, I want to talk about some of my personal reasons why I dislike having IBS-D, and how it has affected my quality of life.

The pain caused by excessive wiping

As I mentioned before, I have had days when I have used the toilet (yes, to go No. 2) more than a few times, and not only does it get tiring, but also very frustrating and extremely painful. The reason why it is both very frustrating and painful, as embarrassing as it is to mention, is due to the intense wiping caused by tenesmus, which is basically the feeling of having an incomplete bowel movement. Therefore, because I hardly ever feel “done”, despite being on the toilet for more than an hour, I end up wiping “down there” pretty excessively. It’s like I have an uncontrollable OCD with wiping because I just keep going back and forth between toilet paper and flushable wipes until I feel comfortable and confident with my cleanliness. And, unfortunately, as a result of the extreme wiping, I invariably end up with hemorrhoids and sometimes bloody stools.

Fatigue caused by bouts of diarrhea

Have you ever had a stomach virus that caused you to have bouts of diarrhea throughout the day, and afterward you felt so exhausted and depleted? This is what it’s like oftentimes for me while dealing with IBS-D. On an average day, I have the urge to go more than 4 times a day, and during a flare-up, it can get to 8-10 times in one day. My body only has so much energy to give, and when most of it is being used to involuntarily strain, I quickly and easily get fatigued. In fact, so fatigued that turning off a light-switch or throwing something away in the trash can seem like a huge chore. So, if that is tough, then imagine still trying to exert energy on other things like work or school. Living with IBS is a struggle in so many ways that most people don’t realize, and it’s unfortunate that we not only have to fight ourselves to function properly but also to be taken seriously by others. The mental, let alone physical, toll this takes on so many of us can feel… devastating.

Being unreliable because of my IBS-D

If you have IBS, then this reason is pretty self-explanatory. Because of my IBS, I have been late, over and over again, to so many different and important occasions. For instance, I had been tardy during college so much that it affected my grades. I eventually dropped out of school because I just didn’t know how to manage my health and education at the same time. Also, many of the jobs I had in the past would end up in jeopardy because I had been late or absent several times. And don’t let me forget to mention the number of times I had to cancel on family or friend’s birthdays and/or weddings, which has created some distance between me and my loved ones. Sometimes all we have is our word, and if we can’t honor it, then what kind of person does that make us? Unreliable.

I can think of so many different reasons as to why I dislike having IBS-D, but I’m not trying to write a book here. I just want to keep emphasizing in different ways just how serious of an effect IBS can have on a person’s quality of life. The pain, fatigue, and unreliability are just a few of those many ways that IBS affects our lives. The challenge we’re left with is trying to manage those things as best as possible while also being the best person we can be.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The IrritableBowelSyndrome.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • ExplodingGuts
    2 weeks ago

    This was me until I had the good fortune of befriending an AZ shrink at fb. He told me about the h pylori bacteria most stomach complaints like IBS and that New Zealand studies showed a teaspoon of raw honey daily typically killed it in about a week. Ha, I thought. Way too easy. I am not anyone with much faith in ‘alternative’ cures but worth a try, I thought. In the meantime, I had the h pylori breath test but it came back negative. I persevered with the honey – still do – and for the most part I have my life back. There are now hours and whole days I don’t even think about my stomach. I was doubly stuck in a city with few public toilets so I couldn’t even go for a walk in peace. I still take the damn honey along with an Immodium gel cap in the am. every day and I am almost completely cured. A couple of difficult days if I eat spinach, which just about kills me for some reason, but mostly I’m recovered 94%. This is esp good news b/c it’s now hard to find a GP accepting new patients and even if you do, you must plead your case for treatment as if you’re attending the high court. The only other treatment I’ve seen has been two weeks at least of two strong antibiotics and even then, it may not be enough. Several courses are needed for some sufferers. Pls try the honey. I see that apple cider vinegar in water is also recommended tho not by my shrink pal. I used to drink this and it seemed to help but not entirely – not like the raw honey. I found the Dexilante and Raboprazole and Metamucil and Olyster were useless. They helped for maybe a day then nothing. I’ve been good on the honey for more than a month now. Diarrhea is SO VERY exhausting and soul destroying, and if one takes too much Immodium, it tears you a new one. Again, try the raw honey. It has given me my life back.

  • Emily
    2 weeks ago

    A teaspoon of raw honey…..do you take it by itself or can you use it in tea on with pb sandwich? Lol. Not sure I could get it down on its own.

  • tmholland moderator
    2 weeks ago

    @explodingguts,

    I’m really glad to hear you are having such good luck with the raw honey. I actually took your recommendation and have been seeing some improvement myself. It would be nice if one thing worked for everyone, but unfortunately, not generally the case with IBS. As usual, we appreciate your contributions to the community and I hope you continue to do well. And I’ll keep trying, too :-).-Todd, IrritableBowelSyndrome.net Team

  • Desertstar
    2 weeks ago

    Dear Hess, I often think that you are able to read my mind! You write exactly what I’m thinking and feeling, and much better than I could ever put into words. Thank you for that! I’ve had IBS for 50 years, but the last 4 years it’s become IBS-D. I average 5 trips to the bathroom every day. My personal record was 17 trips, and sadly, I wasn’t even at home for that unbearable day. I was forced to stop working and rarely leave the house these days. Know that I appreciate every post of yours and the confirming support you provide. I often share your posts with my non-IBS friends, as a way to remind them of my struggles with IBS and to show them that I’m not exaggerating how challenging living with IBS or ANY chronic illness can be. You and this amazing website are a true blessing in my life! Thank you!

  • ExplodingGuts
    2 weeks ago

    We might be twin souls. I have been 94% cured by a tsp of raw honey daily followed by an Immodim gel cap. This is after trying all the expensive nothing burgers – Dexilante, Metamucil, Olyster – prescribed by GI specialist. MDs here don’t seem to understand h pylori, which is most often the cause of a stomach complaint like ours, according to a fb pal of mine in AZ who is a psychiatrist so an MD first. Raw honey has really worked for me. I tested negative for h pylori when I finally had the breath test. So don’t imagine test results are effective. If you think about it raw honey is powerful. It never goes bad without refrigeration so it’s got something magical in it. Thanks for sharing. Maybe it will work for you, too. Be of good faith, my friend. Help may be closer than you think.

  • HessP moderator author
    2 weeks ago

    Dear @desertstar. Thank you so much for your very kind words! You left me nearly speechless with your comment. I’m sorry you can relate to my experience, and even more sorry to hear you have lived with this horrible condition for so long. However, I’m glad you’re able to use my articles not only as a way to feel supported and less alone, but also as a way to advocate for yourself. I truly hope I can continue to do you, and the rest of us with IBS or any other chronic illness, justice through my content of raising awareness. Lately, I’ve been questioning my role and if I have an impact, and then here you go with this wonderful and heartfelt comment. Thank you for not only taking the time to read my article, but sharing words of inspiration that I truly needed to hear. It’s moment like these that always seem to come at the right time. Again, THANK YOU, @desertstar!

  • cfamilyfix
    2 weeks ago

    …big facts. People should also know it’s not just the act of going to the bathroom…it’s the build of of discomfort before during and after that can be hours long only to finally feel a little better in time to eat something (or not) only for it to start all over again. The anxiety of “how am I going to be a person today?” People have stuff they have to do and it becomes stressful when basic acts are just simply out of the question because of the pain and discomfort. I try my best to push through but man some days it’s tough. Thanks Hess

  • HessP moderator author
    2 weeks ago

    Exactly, @cfamilyfix! You are def right! It’s so much deeper than just the act of using the toilet. The repetitive cycle, the constant discomfort, the anxiety, and so and so forth can all make you question how you’re going to function today or even the day after. All we can do is our best. But, whenever times are just too tough to handle, then at least we have support here to lean on. This is why communities like this one are so important because we no longer have to endure the struggles alone. With that being said, please never hesitate in reaching out to me or any other member for support. I appreciate you for taking the time to read and comment on my article. Stay strong and positive! -Hess, IrritableBowelSyndrome.net Team

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